@article{article, title = {{The construction of rare disease discourse on YouTube: highlighting a disparity between policy rhetoric and patient practices around public engagement}}, publisher = {{F1000 Research Ltd}}, url = {{}}, year = {{2022}}, month = {{4}}, author = {{Hanchard M}}, doi = {{10.12688/wellcomeopenres.17324.2}}, volume = {{6}}, journal = {{Wellcome Open Research}}, pages = {{361-361}}, note = {{Accessed on 2025/06/24}}}