@article{article, title = {{The construction of rare disease discourse on YouTube: highlighting a disparity between policy rhetoric and patient practices around public engagement}},
publisher = {{F1000 Research Ltd}},
url = {{}},
year = {{2022}},
month = {{4}},
author = {{Hanchard M}},
doi = {{10.12688/wellcomeopenres.17324.2}},
volume = {{6}},
journal = {{Wellcome Open Research}},
pages = {{361-361}},
note = {{Accessed on 2025/06/24}}}