@article{article, title = {{Parent Experiences and Preferences When Dysmelia Is Identified During the Prenatal and Perinatal Periods: A Qualitative Study Into Family Nursing Care for Rare Diseases}}, publisher = {{SAGE Publications}}, url = {{http://dx.doi.org/10.1177/1074840718772808 }}, year = {{2018}}, month = {{5}}, author = {{Johnson J and Johnson O and Heyhoe J and Fielder C and Dunning A}}, doi = {{10.1177/1074840718772808}}, volume = {{24}}, journal = {{Journal of Family Nursing}}, issue = {{2}}, pages = {{271-293}}, note = {{Accessed on 2025/05/21}}}